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Showing posts with the label acinar

More Things They Don't Tell You

They don't tell you that you'll come home after the first visit to the Cancer Treatment Center and your plants will be dead. Not the "I forgot to water it" dead. But DEAD.    That the first thing you think upon entering the house and depositing your bag is, "Shit. Everything around me is dying." Or that weeks later you'll be listening to your boyfriend and friends playing bluegrass and you'll think of your mom. Asleep in her bed with that ridiculously hilarious sleep mask on.  How is she losing weight when she's eating 8 times a day? Did you know there's a name for "wasting away"? It's cachexia.  I hate the phrase wasting away. As if someone isn't doing something to try and help. My brothers and sister in law and I are keeping sharp tabs on her medical notes and feeding her healthy, high calorie protein rich food. But it just falls right off. Maybe we're just trying to WILL her body to start acting eight.  Ho...

Medical Oncology and the It Depends Factor

I didn't update yesterday because it was such a long day. We had a few hours of The New Patient Experience, saw gastroenterology, pulmonology. Mom is having a biopsy via endoscopy ultrasound on Friday.  She did really well for being at the Center all day. What I'm not telling you is we got ourselves a nap between the appointments and the Experience.   Today, I'll be honest. I'm nearing panic attack right now and we're not even at the Center yet. I took one of my anxiety meds, which hasn't happened in a while. I could fall back to sleep so I'm sure Mom could too. The pulmonologist was happy the fluid in her lungs seems to be decreasing. Mom 11 happy too. She gained  1 1/4 lbs yesterday. She's been eating nonstop so hopefully we'll see more weight gain.  Later..... This is fucking scary.  All of it. Trying to get things scheduled in a way that addresses the acinar carcinoma swiftly but also being patient and not Basically Momma has a very rare cancer c...