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Showing posts from March, 2016

A Plastic Surgeon Appointment- Finally!

Today I got the call from my breast surgeon with her recommendation on who would be best not only for my reconstruction but also for my particular set of medical issues. On April 20th I'll be going in to see Dr. Michael Beckenstein at St. Vincent's Hospital in Birmingham to discuss my options for my reconstruction. At this point I'm just trying not to completely obsess over what's going on soon. But it's hard to do because I really just want to get this over with and deal with it.  I've started to compose some questions to ask my plastic surgeon. Maybe they could help you. - How long will my surgery take? - What are my best options/choices for reconstruction? - Where will my scars be? - Will there be sutures to remove after surgery? - How long will my hospital stay be? - How long until I can work, drive, have sex? - What kind of anesthesia will be used? - What is the percentage of infection? - How many drains will I have? - How long will I have the drains? - How...

Hurry Up and Wait

               That's what Andrew and I are doing. Hurry up and waiting. Dr. Winchester (my breast surgeon) told me that they would find a good plastic surgeon to work with both my Hughes Syndrome and make sure that everyone was comfortable with my "special" set of medical circumstances and considerations.  So we are waiting. She did tell me before the end of March, so that's next week.               In other news, Andrew and I are just working hard, enjoying the break in the weather, and we got to spend some time with each other during spring break even though I worked the entire week. We DID get to go see Mary Poppins with CharACTers Entertainment in Gadsden, AL. If you haven't seen these folks, they are amazing. You can check them out here . Here we are at Mary Poppins, waiting for the show to begin.  Also, bonus! It's spring time! So my roses have started to bloom!  This is j...

Breast Cancer Surgeons and Italian Food

Yesterday was my very first, successful breast surgeon appointment. By successful, I mean I didn't run screaming into the parking lot. So there's that. Dr. Winchester at St. Vincent's in Birmingham (Yes, I'm totally plugging her) is amazing. We got there at 4:30 pm. The appointment was at 5. We walked out at around 7:45 after being called back in around 7:00. When we first arrived, even at that late hour, the waiting room was full. Which was surprising, but not THAT surprising. Because I have no cancer and no cells that may be cancer, my appointment consisted mainly of meeting, taking a measure of each other, and then getting my vitals and history. She made sure to give me all my choices to prevent cancer, aside from the mastectomy that I was there to talk about. She examined me and said I was perfect for what's called a "nipple sparing prophylactic mastectomy". We'll call that NSPM for short from now on. So she explained that she does the best NSPM e...

Spring Mornings and Prophylactic Mastectomies

I woke up earlier than normal today and decided to get out of bed and have my cup of coffee alone and in the sun of my kitchen nook.  In all the running of every day between work and school, I wanted to just take a moment. Today is going to be a beautiful spring day. Tomorrow is my first appointment with a breast cancer doctor that specializes in breasts. I've been sitting on positive BRCA 1 and BRCA 2 results for about ten years now, and after seeing a few doctors and plastic surgeons (scary ones!) here and then over the years, it's finally time to decide for good whether or not my prophylactic mastectomy will take place. Andrew (my husband) and I have talked it over so many times that we're both great with the idea of lowering my cancer risk to 5% or lower, especially after it being around 94%. But facing it actually happening is another story. So I'm trying to get back to center and start just being quiet and aware. Turning the phone off. Turning the TV off and j...